Heavy Hearts....


{update...today is not his birthday...its just cause I love him but thanks ,hehe}
Is this just the cutest baby! Yeah, I know he's mine and I'm a bit proud BUT... This was just minutes after we brought him home. What we didn't know was...

This chubby bundle that was born two weeks late was chubby for all the wrong reasons. That next day we ended up back in the hospital with a ton of unanswered questions. Why Lord? Why this baby? He was born with two holes in his heart. A heart defect known as VSD. The road ahead was so scary and so uncertain and still is at times.

What we do know now is ...He is eighteen and one strong cookie! Many prayers have been said over this precious child of mine. One hole has closed but the largest hole remains stubborn and is a constant reminder how we cherish life. The Dr.s are optimistic and watch him and his resilient heart. We are not sure what the future holds for him. Will he need surgery as an adult? We just take everyday as a gift and are so glad that he is healthy and strong and stubborn and kindhearted and here with us. I'm grateful.
Why post this today?

I just found this sweet family and it has brought me to tears. I'm so glad Jesse was strong enough to never need all of this to survive. If you can see past all of the machines and gadgets ,there is one tiny life there. Her name is Gracie.

She was born with a heart defect and received a new heart just days ago. What should have been a long awaited joyful event turned out to be her last days. Sweet Gracie went home to be with her Lord but left behind all of her strong organs for other sweet babies. God Bless Her... and her precious family. I hope today you take the chance to hug someone you love and tell them. I know I did~

25 comments:

  1. Susie, happy birthday to your son! Thank you for updating us on baby Gracie. I've been following her blog the past few days. My heart is so heavy. I feel for that family, and any family that loses a child.

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  2. I don't know this family but I will be praying for them. I can't imagine the pain of losing their dear baby.

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  3. I will definitely keep this little baby in our prayers and your son as well. What a miracle he has become despite the hard road! Thanks for sharing.

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  4. My heart goes out to this family. I will put them in my prayers. Thanks for sharing.

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  5. Oh my gosh :( I have a son with a VSD. It is so scary. SO happy your son is strong and thriving. Poor Gracie's family. Will be praying...

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  6. Through your posts you have reached many who will keep Gracies's family in their prayers--I hope this family is able to feel that love reaching out to them

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  7. I read about Gracie the other day & it's so tragic. I'm glad the situation was different for your family.
    What a handsome young man.

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  8. Happy Birthday to your son. It's great to hear that he is doing well and going strong.
    So sad to hear about this family losing their little baby.
    Ruth

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  9. My oldest had a VSD but it did close spontaneously. I don't know this family but I will say a prayer...and what preciousness to leave her organs for other babies. Happy Birthday to your handsome son. May he be strong in the Lord and in his heart!

    Suzanne

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  10. Happy Birthday to your son. I will pray for this family!

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  11. Sweet birthday wishes for your son, Susie!

    It breaks my heart to hear Gracie's story.
    Your post makes me think of our precious Elijah, who only lived a short while (posterior urethral valves). Gracie's parents are amazing folks, to help other babies, with the donation of Gracie's organs.
    Kim (daughter) and Shawn (son in law) donated Elijah's body to Washington University School of Medicine, in hopes other babies might be helped.
    Shawn's nephew was born with a hole in his heart and has had many surgeries. He seems to be doing okay.

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  12. Susie...I saw this same post late last night I was so in tears from this beautiful baby. This story just tore me up inside...I actually went through the whole blog reading this and when I saw her little body from all the shots it just made me even more sad and more tears fell. I can't imagine losing a child but came so close about a month ago and so happy I was spared this. I feel for this family and hope those other sweet brothers and sisters try to remember she is no PAIN no more!


    Wishing Jesse a Happy Birthday! I will also keep your family in my prayers also!

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  13. Thanks for the birthday wishes but its not Jesses birhday...not till October~ Thanks again!

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  14. Thanks for sharing - tears came early this morning when I read your post about Gracie. I guess I will never understand why some things have to happen.
    On a happier note, that handsome son of yours is healthy and hopefully God will close that other hole up with no surgery!

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  15. Hey, Suzie!

    This post just touched my heart. First, what blessings your oldest has been given by our awesome God! SO glad that things are going well!

    I will be in prayer for the family of Gracie. Thanks for letting us know.

    I have a button on my blog for baby Jonah. Please hop over when you can and visit his parents. He needs lots of prayer!

    Hugs,
    Susan

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  16. What a sweet story of your son. May God continue bless him. Thanks for sharing Gracie's story. So sad!

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  17. I am at a loss for words over Gracie...Thank you for letting me know about her. I had not even known about the blog. I will be praying for their family.

    Thank you for sharing the story of your son. What an inspiration!

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  18. I am so glad your son is doing fine, and I am so sorry for the pain this other family is having to endure...what a darling little girl!

    Our friend's niece recently gave birth to twin girls who both have a genetic condition called Trisomy 13. One has already gone to be with the Lord. Please pray for the other twin, Addy. May God reveal His glory through these babies no matter how short their lives may be!

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  19. My cousin has two siblings in heaven, both of which had holes in their hearts. What a gift Jesse's life is to you!

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  20. ahhhh...what a great post. there's so many prayer needs for kiddos who are struggling right now..it's nice to give them all (and me) a glimpse of the possible future. i'm off to pray for that sweet princess...

    another sweet baby trying to recover form open heart at like 2 days old is andie grace at http://andiegrace.blogspot.com

    and, my little bro was born with a VSD...other issues took him home to jesus at the age of 4.

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  21. I read about Gracie the other night and was sitting here at my computer with tears pouring down my face. That sweet little girl - God bless that family for their loss and for the miracle they are giving to other children for donating her organs.

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  22. How much we take for granted -- how blessed we are anyway! My daughter (3) also has a VSD, slowly healing....

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  23. My heart breaks for little Gracie's family, this is very sad.

    Each day is a very precious gift, and we should cherish every minute we have with our loved ones.

    You have such a handsome son, I will pray that he will continue to be strong & healthy.

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  24. Susie, I haven't been on lately, so I haven't read about Gracie. How very sad. My cousin lost her little boy to VSD and was flown to Children's Hospital in Phildelphia, but only survived 16 days. I did get to hold him and that was a Blessing. There are so many little babies needing prayers right now and what a wonderful gift her parents and she gave.
    Jesse is a very handsome young man and I wonder why. Love and hugs, Pat

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  25. I just found your blog and love it. My sister has VSD. She is 37 and healthy! She had a little scare in her 20's but is great now.

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